She’s just the smileiest happiest child what it’s like to have a child with a rare facial condition? Tessa Evans was born with arynia, meaning she has no nose, no sense of smell and no sinuses, but she can cough, sneeze and catch a cold. She’s the first person to have a special cosmetic nasal implant fitted over the years. It will encourage a new nose to grow out of stretched skin. She’ll have a final nasal prosthetic fitted when she’s a teenager.
Her mother tells us her story. Tessa, my four year old daughter, was born without a nose due to a genetic condition. An ultrasound performed while I was 20 weeks pregnant with her revealed that she had an abnormally slack fetal profile. I remember those words so well because I was concerned about what they could possibly mean. The 3D scan and amniocentesis performed by my husband, Nathan and myself, however, revealed that we were both in perfect health. Read the full story here ▶
